Keep on moving, don't stop now!

Oh boy, oh boy!

Uriah was born with an unexpected diagnosis of Osteogenesis Imperfecta. In layman's terms its commonly known as brittle bones disease. This term is actually quite alarming to most because they hear disease and think its contagious! Its actually medically more of a disorder because it is the bodies inability to produce proper levels of collagen which is what makes our bones hard. I usually describe it to people as a liking to women with osteoporosis but on a grander scale because it occurs at the beginning of life when your body is trying to develop all that it needs to be compatible to a typical life. I'm happy to explain in further detail, so feel free to email me. We are currently putting together our vision for a book in hopes to encourage other families who may not have the same situation in life, but need the same faith! Pastor Otis Lockett of Evangel Word Fellowship may never know the impact that he has had in our lives, but he truly is a man of God with unwavering faith. God knows where to place you under His leadership because Pastor Lockett was doing a series on becoming a Lion Chaser and we knew then that the message was meant for us and our guidance. We had a lion to chase and we were definitely up for the fight!
When Little Uri (that's what his PaPa calls him) was born, we had every expectation that he was going to be a healthy baby boy. Unfortunately in the medical community, you are provided with hardcore and alarming diagnoses that can trigger the innermost unsettling feelings you could experience in life. After being told in our initial anatomy ultrasound that we should terminate the pregnancy because all of the possibilities that could be present were not likely to be compatible to life for our child, God scooped us up in His big arms and its been smooth sailing (with a little turbulence) ever since! Its not easy having a child who can break both his legs in a matter of days simply because he reached for a toy and fell over at a weird angle OR was testing his new courage out by standing at the couch holding on with one tiny hand. The days are filled with thoughts of "what will his strength be like when the casts come off" or "will he regress from all the strides we've made in his physical therapy", but I have to keep on my game face because Uriah needs every ounce of support he can get! We've been blessed to have made it 15 months with no breaks and we have every expectation to not make them a routine part of  our days once we get over this hump. I will admit that it wasn't as spirit crushing as I thought it would be with our first break, but it was a reality check for sure. Uriah's spirits are out the roof and seeing his chunky, toothless grin every morning when I walk in his room gives me far more pride than the two degrees, fat paychecks, or pre-baby accomplishments that I've had! Our lives have been enhanced since February 2010 and I can only jump with excitement for what is to come.

Well, he's taking a nap now and that means its time for a shower and a bite to eat...maybe even some reading out on the patio...ta-ta lovelies!

Romans 5:1-5 - ¹ Therefore, since we have been justified through faith, we have peace with God through our Lord Jesus Christ, ² through whom we have gained access by faith into this grace in which we now stand. And we boast in the hope of the glory of God. ³ Not only so, but we also glory in our sufferings, because we know that suffering produces perseverance; ⁴ perseverance, character; and character, hope. ⁵ And hope does not put us to shame, because God’s love has been poured out into our hearts through the Holy Spirit, who has been given to us.